The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. Claire Wineland became renowned for her posts about illness and mortality on social media A young US woman with cystic fibrosis who made a name for herself through writing, speaking and social. What if they poured everything into her transplant, and she didnt make it or was not able to work again, she explained later. Really. By mid-August, she was back on and feeling ready.She'd worked hard to get there, was focused on her self-care and getting stronger. "None of it spooked me," Claire said afterward. Kalpana Chawla Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughters aura and her ability to lift up those around her. 2023 BBC. Swami Vivekananda Cause of Death, Age of Death, and Other Facts! Life isnt just about being happy. Claire Wineland spent a quarter of her life in the hospital. She once escaped from the hospital so she could attend a Bernie Sanders rally. Before signing off, Claire implored viewers to do one thing. See the events in life of Claire Wineland in Chronological Order, https://verilymag.com/2016/12/claire-wineland-cystic-fibrosis-living-with-chronic-illness-inspiring-women-news-1612, https://www.tah-heetch.com/claire-wineland-on-cystic-fibrosis-death-wish-coffee-company-hjh9onjzix7b1usu.html, https://www.mirror.co.uk/news/us-news/youtube-star-claire-wineland-dead-13190564, https://www.lionsroar.com/claire-wineland-cystic-fibrosis-activist-dies-at-age-21/, https://centredailytimes.org/health/claire-wineland-dead-21-youtube-star-passes-week-undergoing-44680242, https://www.wpsdlocal6.com/2018/09/03/she-expected-to-die-young-then-came-the-call-that-offered-new-life/, http://www.newindianexpress.com/entertainment/english/2018/sep/09/documentary-on-author-activist-claire-wineland-in-works-1869742.html. Im grateful for the chance to keep being a person. Im not an innocent and Im not a child. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Claires parents learned to trust their independent and strong-willed daughter. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. Regarding her nationality, Wineland was an American and ethnicity wise she was white. Read about our approach to external linking. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. Claire Wineland's greatest wish, her mother said, was that "her foundation will live on, even in her absence.". Menu. 2:33 PM EDT, Tue September 4, 2018. She performed with Philips Breathless Choir, as a solo singer. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. It was a welcome, albeit terrifying, development for those who loved her.To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. Despite facing a life-threatening disease, she always remained positive, smiling and motivated people with her speeches and activities. By mid-August, she was back on and feeling ready. Thus, at the age of 13, Wineland founded her non-profit organization, Claires Place Foundation. The organization aimed at providing financial and emotional assistance to patients of cystic fibrosis, and their families.  At age 13, her lungs failed and she was placed in a medically-induced coma. Claire Wineland was a person who did not like to be pitied. She listened to the risks and the long list of side effects and emerged unfazed. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. La Jolla, California CNN . Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! @larissaperoux We some cheese balls just cheesing it up. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure.There is no cure, but dutiful breathing treatments -- which eat up hours each day -- can help with symptoms and complications. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. Im grateful for the doctors thatll be scooping out these lungs and giving me some more life to work with. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. View this post on Instagram The social media sensation died Sunday, a week after she suffered a stroke following surgery for a double lung . Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. "The nine-hour surgery went well, and her mother reported that the lungs were working great. Get breaking news alerts& today's headlines inyour inbox. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, Maximum two drinks a week, Canada guidance advises, US porn star declared unfit for sex crimes trial. Her foundation said she had died peacefully, surrounded by family. Your effort and contribution in providing this feedback is much "I had to be honest," she once explained. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. Pink Floyd, The Beatles, The Killers, The Rolling Stones, Ben Harper, Dr. Who, Dexter, Adventure Time, SpongeBob SquarePants, Harry Potter by J. K. Rowling, The Mortal Instruments by Cassandra Clare. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. She was 21 years old. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. Harris (19912023), American Idol contestant, Keenan Cahill (19952022), YouTube celebrity lip syncer, Lupe Serrano (19302023), ballerina who danced with Nureyev, Joseph Jo Mersa Marley (19912022), reggae musician and grandson of Bob Marley.  She enjoyed performing from a young age and appeared in The Music Man at age four. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. She wasn't done contributing. She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Michael Jackson Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Updated  She was a TEDx speaker and spoke at a number of conferences worldwide. See yall on [the] other side.. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Iran man who beheaded wife jailed for eight years, Celebrities who say their children will get no inheritance, Polar bear kills woman and boy in Alaska village, Baby among six killed in possible cartel hit in US, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. Is there someone you miss whose memory should be honored? The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter. "Her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in northern California," her mother Melissa Yeager told CNN. Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. She watched one of her doctors squirm as he gave her the safe-sex talk. She needed financial help. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. The 2016 Democratic presidential candidate paid tribute to her in a post on Twitter.  According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it., On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. She joked that the squats she was doing, upon doctors orders, would help get her more than lungs. "Death is Inevitable. Due to her life treatning disease, she spent the majority of her life in hospital. I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! "Its been a very long few days and I wanted to give everyone an update on how Claire is doing", "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball', "Who Is Claire Wineland?  She died from a blood clot one week after receiving a double lung transplant at the age of 21. The gift of life: Recipient of an organ donation herself, her organs were donated after her death. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. Find an Obituary. After the death of Claire Wineland, her family intends to carry on the noble work started by her. She was 21. Cystic fibrosis did not define Claire Wineland. So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them.  Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). You are an inspiration and brought joy to many. Hap Moran Cause of Death, Age of Death, and Other Facts! A self-described goofball, she usually engaged people with humor and optimism. Wineland miraculously came back to life. The family received immense support from friends, and community. Wineland was invited as a speaker at many international conferences. Rest in peace dearest Claire As most of you know, September 2, 2018 at 6:00pm, Claire Wineland passed away. Wineland wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis and was a TEDx speaker.#ClaireWineland #death #Frostsnow Im grateful for my own head and for all the weird things in it. Support Families program offers assistance in treatment, and emotional support from volunteers. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Menu. She was chosen to be the keynote speaker at the 63rd International Respiratory Convention and Exhibition. She was a crusader for the patients who suffered from cystic fibrosis, and other terminal illnesses. These words were a gift, a reminder that Claire would remain with her always, even after she was gone. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. You are an inspiration and brought joy to many. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given," she said. Claire was an activist, author, TEDx Speaker, social media. She has gone on to become an advocate for others suffering from the disease she has had since birth. To face each day, Claire Wineland undergoes hours of breathing treatments. The BBC is not responsible for the content of external sites. Claire Wineland died at age 21, too young. She decorated her hospital room, and posted inspirational messages on its walls. Go enjoy your life. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. In one of the last videos Claire posted, she went where she hadnt before. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She played hide-and-seek with nurses and left explosions of glitter in her wake. , Wineland was born with cystic fibrosis in Austin, Texas. She had a popular YouTube channel, gave Now that Im looking at it as something I have to do Im willing to deal with anything.. "I didn't realize how much I didn't expect to live this long. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. After work hours guitarist, DJ, record label owner and New York style pizza aficionado. I use to live half time with my dad and half with my mom, but since I got sick we . Claires Place Foundation is planning to continue extending support to patients. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries.  She joined the Philips "Breathless Choir" as a soloist. The BBC is not responsible for the content of external sites. Find an Obituary . Sign up for our email list to stay in the know. Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. She'd travel, answer calls for speaking engagements and put energy intoher foundation, which she set up at age 13 after coming out of a 16-day medically induced coma. The nine-hour surgery went well, and her mother reported that the lungs were working great. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc We invite you to share condolences for Claire Wineland . Notable quote: I do these talks to make a point. She was of the mind that she would leave this world with the body she came in with. She had a popular YouTube channel, gave . Her foundation said she had died peacefully, surrounded by family. The cause of death was a massive stroke she suffered soon after the transplant surgery. Details of death: Died in San Diego after suffering a stroke following a double-lung transplant. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. . Menu. ", Claire Wineland, reflecting on her outlook on life. I have step parents that are fabulous. When she was unable to create videos due to declining health, the company cut her off. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. It was released on the first anniversary of Wineland's death. So grateful for everything this month. , Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. They remained close friends, and shared the responsibilities of taking care of their daughter. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. But not long after the successful surgery, hope turned to fear.